ALS ice bucket challenge

 

 

 

My BIL sent me the ALS ice bucket challenge this morning. I knew I would do it but I wanted to make sure the message wouldn’t be lost. More importantly I wanted to be part of the ALS awareness campaign by actually donating. There is no foundation for ALS awareness or research in the Philippines. There’s a Facebook group but I don’t know who they are and I only donate to registered organizations. So began a very interesting discussion on my Facebook page on how to give this ice bucket challenge more relevance in the Philippine context. You can see it here.

ALS is a progressive neuromuscular disease in which nerve cells die and leave voluntary muscles paralyzed. The first time I heard of ALS/Lou Gehrig’s disease was when I was a freshman in university in Canada. My friend’s mom was diagnosed with it. She quickly deteriorated and died within a couple of years. I also took on a summer job to assist a woman with ALS. Her name was Susan. She had already lost control of her motor skills while mentally she was still ok. She worked for a government department, and they kept her working as long as she wanted and could. She would dictate her letters and documents to me in a very slurred manner, and I’d write/type for her. I also mixed her liquid food. I saw how fast ALS took over her body. It’s a horrible illness.

I’m glad that this awareness campaign has gotten so big. It’s now here in the Philippines. However I think it’s futile to just do the bucket challenge and not actually donate or discuss the issues. So I did the challenge plus donated money to ALS Canada.

In keeping with the original spirit of the ice bucket challenge I am also bringing up another cause that’s very close to my heart – Breast Cancer Prevention. The Philippines has the highest rate of breast cancer in the region. Until we find a cure, our best defense is early prevention. So I’m donating free mammograms for women in need through I Can Serve Foundation. Hope thats ok!

BTW the bowls were filled with ice but I guess they melted while I was talking. We’re here in the tropics after all… apparently very near the airport too.

I urge you to find your own meaning and cause to add to ALS awareness. If you can, please donate to a reputable research fund. It is only through research that we will one day find a cure for these medical conditions.

 

To know more about how the ALS and how the ice bucket challenge went viral, watch this.

 

For info on ALS Canada, http://www.als.ca

For Breast Cancer support, http://www.icanservefoundation.org

 

 

Leave a comment

  • Eliza

    Dear Daphne,
    Thank you for joining in raising awareness for ALS. You are indeed correct. ALS is a horrible disease. I have personal knowledge because my father passed away due to this disease. He was such a fighter. During his sickness, he never showed how difficult it was to bear. He was always smiling, always grateful for all those people, nurses and doctors who took care of him and helped our family. I would always see him praying perhaps asking for a little bit of bargain with the Lord in order to spend more time with us … He was able to witness my wedding. A few months after… he lost the fight. I miss him everyday. But it is true that it is only love will help you understand to let someone go.

    I hope that we find a cure to this disease soon. Thank you.

    • Anonymous

      Eliza, thank you for sharing your story. I am so sorry for your loss. Deepest condolences.

    • Eliza Dimagiba

      from one eliza to another….may the Lord bless you and your family with the strength to continue living life fully even without your dad…